tag:blogger.com,1999:blog-66065778391651749502024-03-05T00:41:47.971-08:00Emmetts FightEmmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.comBlogger105125tag:blogger.com,1999:blog-6606577839165174950.post-70500993702616236912015-04-05T12:46:00.001-07:002015-04-05T12:46:50.060-07:00Celebration of Easter- He Lives!<div style="text-align: center;">
Easter Sunday is such a beautiful day! It is Spring time, flowers are in abundance, the weather is warm but still penetrates a sense of a cool breeze, the sun shines more than it has in months past and a sense of true real happiness fills the air.</div>
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I don't think it is a coincidence that one of the most important remarkable miracles the world has ever or will ever experience occurred during the beautiful season of spring. To be saved from an eternal state of death to every lasting LIFE! To know after all we can do, we are saved by GRACE because of the love and mercies of a loving Father in Heaven and His only begotten Son, Jesus Christ. </div>
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To know that no matter my weaknesses or sorrows, our pain spiritually, emotionally and or physically, the Savior of this world has suffered it all and can and will walk beside us if we open our hearts to let His infinite love and grace in!</div>
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I have had to open my heart, through our families struggles, to the mercies and atoning love of Jesus Christ to help us endure the pain and anguish that come's because of life's challenges. I encourage you if you are struggling to find answers to life's questions to seek Christ! He know's you and He love's you. Miracle's happen not always in the way we expect them to happen, but God know's us best and will teach us what we need to know to better understand ourselves.</div>
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Because of Him!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-14230789515710420872015-03-05T12:33:00.002-08:002015-03-05T13:14:39.129-08:00Jake Schneberger And His Courageous Battle<br />
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Many times I come across stories that truly pull at my heart. In life, none of us are exempt from trials, however the intensity and struggle of some leave me in ahhh over how these individuals can endure and overcome them. There is no question in my mind and heart that having a testimony of the life and divinity of our Savior Jesus Christ is the only way to find strength to endure our burdens and bring peace to our souls.<br />
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The Schneberger family is a true testament of this. Jake Schneberger is a husband and father who has lived a life full of love and joy with his beautiful family in Oklahoma. His life suddenly took an unexpected turn and he has been valiantly fighting for his life ever since. Touched by him and his family's story, I asked if I could respectfully share his courageous journey. Jake's wife Susan recounts the past five years of their lives.</div>
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I feel strongly from our own personal experience, that prayer in numbers can bring about great miracles and tremendous peace. I ask as you read the Schneberger's story, that you pray for them in your hearts as they continue to fight for Jake's life.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit5BqNcu8V316a0F_UoXt6zbTZXVS6BTOD_gg-LF2NVjVmkQ1j8YlZdfYwHw86-VVkyr9_qC1bXyS7hHlZuRSLMecUbxa-kLIzE3viUCSCOl4fG3THXeQP-EzHOcnuljSxp5PmS4fcbPA/s1600/223386_2004153031287_5163873_n.jpg" target="_blank"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEit5BqNcu8V316a0F_UoXt6zbTZXVS6BTOD_gg-LF2NVjVmkQ1j8YlZdfYwHw86-VVkyr9_qC1bXyS7hHlZuRSLMecUbxa-kLIzE3viUCSCOl4fG3THXeQP-EzHOcnuljSxp5PmS4fcbPA/s1600/223386_2004153031287_5163873_n.jpg" width="213" /></a></div>
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Jake Schneberger Story- Shared by Susan Schneberger</div>
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In 2010, Jake began having frequent, reoccurring migraines. He had them as a child, but they were not nearly as severe as the migraines he was experiencing at 30 years old.</div>
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2011: Our family physician finally recommended an MRI and referred us to a local neurologist. After being informed that he had a very large brain tumor in his left cerebral hemisphere, three doctors said there was nothing they could do for him. After our son's 1st birthday, we traveled to MD Anderson on April 31, 2011. Dr. Prahbu informed us that he could, in fact, help us and that there was no timeline on Jake's life. We learned that the tumor infiltrated both frontal lobes of his brain and that he wanted to remove the largest portion of the tumor on the left side. He scheduled a craniotomy for May 13, 2011.</div>
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Dr. Prahbu performed a 6-hour awake craniotomy to remove 60% of his front left lobe. He was diagnosed with having a Stage 2 Oligodendroglioma. Jake can recall details from the surgery as he was answering questions the entire time to indicate to Dr. Prahbu how much of the tumor he could remove without causing severe neurological damage. Jake recovered remarkably well. He continued chemotherapy after the surgery and had no lasting physical problems. It was amazing.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-wF0PpN6BuL78CuFez5g7CVDEFWj92qo1tKC7lt5AEFzPVLi6I72B5YOcZ2UeCRdCPQKBPZTb-Y2iAeoCLD7xJUsk2wBzYPcY07ijbadGbzWnvsc_8KJgjbs2jgcFEv-xtQfatt_rknA/s1600/230687_2004153671303_2378247_n.jpg" target="_blank"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-wF0PpN6BuL78CuFez5g7CVDEFWj92qo1tKC7lt5AEFzPVLi6I72B5YOcZ2UeCRdCPQKBPZTb-Y2iAeoCLD7xJUsk2wBzYPcY07ijbadGbzWnvsc_8KJgjbs2jgcFEv-xtQfatt_rknA/s1600/230687_2004153671303_2378247_n.jpg" width="133" /></a></div>
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2013: After two years of regular check-ups and no indication that the tumor was growing, Jake was feeling back to his "old self" and he skipped his final check up in August 2013. On December 4, 2013, Jake was taken back to MD Anderson for complications. His memory had lapsed and he had severe problems with his vision. An MRI showed that Jake had developed a new, more aggressive glioma tumor that had now infiltrated all four sections of the brain. We relocated to Houston at the end of January for a 6-week rigorous daily radiation treatment to stop the tumor from growing. The radiation was a success and we were sent back home to Oklahoma. He continued chemotherapy throughout the year with weekly visits to his local oncologist, and every 6 weeks a trip to MD Anderson for an MRI. </div>
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2014: The doctors were confident that the tumor was stable after his last MRI on November 15, 2014. He continued his cycles of chemotherapy, but began to have severe pains in his neck and back. The local oncologist sent him in for several scans of his back, but there were no signs as to why he was having so much discomfort. </div>
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<span style="font-family: Times New Roman; font-size: small;">2015: The back and neck pain continued to worsen to the point that he would stay in bed for days at a time. He was just about to finish chemotherapy and the doctors assured us he would begin to gain weight and get his strength back. They believed Jake's pain was probably due to the toxic levels in his body from the constant chemotherapy. February 5, 2015 Jake picked our son up from school and came home to take a nap. As I tried to wake him from his nap, I recognized the same glazed look and lack of response I had seen before. An ambulance transferred him to a local emergency room, and after an MRI and a consult with specialists at MD Anderson, the decision was made to MedFlight him to Houston. When he arrived, he had a low-grade fever and was incoherent. At first, they said an infection in his spine was probably the cause of this episode. After several tests came back negative, they scheduled him to have a full spine MRI and spinal tap. Four days later, we received the devastating news that the second tumor had significantly spread all throughout his spine and into his spinal fluid in 82 short days from his last MRI. He is now diagnosed with Leptomeningeal Disease and given weeks to live.</span></div>
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<span style="font-family: Times New Roman; font-size: small;">- Susan Schneberger</span></div>
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<span style="font-family: Times New Roman; font-size: small;">Follow Jake's journey on <a href="https://www.facebook.com/groups/WeLoveJake/" target="_blank">facebook</a></span></div>
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A news segment shared Jake's story on the Oklahoma <a href="http://www.news9.com/story/28133732/metro-man-inspires-others-as-he-fights-brain-tumor" target="_blank">Channel 9 News</a></div>
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<span style="font-family: Times New Roman; font-size: small;"><br /></span><span style="font-family: Times New Roman; font-size: small;">I just spoke with Susan's sister-in-law, Marji, this morning. She shared with me that last night Jake took a difficult turn and is now in hospice care. Our thoughts and prayers go out to the Schneberger family at this time. A scriptural account that always brought peace to my heart during our darkest battles with Emmett was this: "Behold, the Lord hath redeemed my soul... I have beheld his glory, and I am encircled about eternally in the arms of his love" 2 Nephi 1:15</span></div>
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<span style="font-family: Times New Roman; font-size: small;"><br /></span><span style="font-family: Times New Roman; font-size: small;">An account has been set up to help the Schneberger family during this difficult time. To help the Schneberger family. please click <a href="https://www.paypal.com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=JGLJUE2X6BVZY" target="_blank"><span style="color: #0072c6;">Here</span></a> and <a href="http://www.gofundme.com/m5xgk0" target="_blank"><span style="color: #0072c6;">Here</span></a>.</span></div>
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Along with Safety, Emmett's Fight promotes all things GOOD! Our family had the honor of knowing Nick and his mother Traci during our many stays at Phoenix Children's Hospital. </div>
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Truly two of the most amazing people we have met!</div>
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Nick's legacy lives on through his mother and his many follower's who have been inspired and touched by him and his love for life. Read below to learn how you can "Spread the Love" by "You've been Nick'ed!" someone!</div>
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<a href="https://www.facebook.com/pages/Nicks-Epic-Battle-to-Defeat-Osteosarcoma/511809668865876?fref=nf" target="_blank">Nick's Epic Battle to Defeat Osteosarcoma</a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8rjCqa2iJZ5tR9R9rTRMNTJqvHFa3D5tpICgnUl4t5lvg4uyNbhu1iWvy20PNQNWsJCj0EfWThA3zAzTuv-o_7opiyORpO6U-Y_Z5r9ziTIFA9CXY4G36ZOpyEO0b2trDY0SZshXW97o/s1600/1975109_834031989976974_4333055773856171494_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj8rjCqa2iJZ5tR9R9rTRMNTJqvHFa3D5tpICgnUl4t5lvg4uyNbhu1iWvy20PNQNWsJCj0EfWThA3zAzTuv-o_7opiyORpO6U-Y_Z5r9ziTIFA9CXY4G36ZOpyEO0b2trDY0SZshXW97o/s1600/1975109_834031989976974_4333055773856171494_n.jpg" height="428" width="640" /></a></div>
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<br />Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com1tag:blogger.com,1999:blog-6606577839165174950.post-60400423841254590132015-02-09T00:30:00.000-08:002015-02-09T00:30:05.948-08:00Safely Recycle those Old Batteries Guest blogger Melissa Schaap<div style="background-color: white; color: #444444; font-family: Calibri; font-size: 16px; line-height: 22.7199993133545px;">
<span style="font-family: Calibri, sans-serif; font-size: small; line-height: normal;">Post by: Melissa Schaap from Battery Solutions</span><br />
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<span style="color: black; font-family: Calibri,sans-serif; line-height: normal;"><span style="font-size: small;">We know, all too well, the dangers of ingesting button cell </span><span style="font-size: small;">batteries and everyday people are learning how to safeguard their children from this type of preventable injury. </span><span style="font-size: small;">But what happens when they run out of power and it</span><span style="font-size: small;">’</span><span style="font-size: small;">s time to get rid of them? Should you throw them in trash? Store them in an old shoebox until you figure out what to do? Or properly dispose of them through recycling? Ding. Ding. There are lots of options for recycling your spent batteries and recycling is the safest and proper way to dispose them.</span></span></div>
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<span style="color: black; font-family: Calibri,sans-serif; line-height: normal;"><span style="font-size: small;">A company called </span><span style="font-size: small;"></span><a href="http://www.batteryrecycling.com/" style="color: #0068cf; cursor: pointer; font-weight: inherit; line-height: 22.7199993133545px;" target="_blank"><span style="font-size: small; line-height: normal;">Battery Solutions</span></a><span style="font-size: small;"> </span><span style="font-size: small;">provides unmatched convenience by being </span><span style="font-size: small;">the </span><span style="font-size: small;">only provider that allows its customers to put all battery types and chemistries into one receptacle. You can put bu</span><span style="font-size: small;">tton cell (the ones inside your watch), lithium coin cell (the ones inside your car key fob or heart rate monitor), </span><span style="font-size: small;">rechargeable batteries, alkalines, and even your mobile phone or small power tool batteries. All in one place. They provide a SmartReycle System and </span><a href="http://www.batteryrecycling.com/Categories/iRecycle+Kits/195" style="color: #0068cf; cursor: pointer; font-weight: inherit; line-height: 22.7199993133545px;" target="_blank"><span style="font-size: small; line-height: normal;">iRecycle Kits</span></a><span style="font-size: small;"> ranging from five pounds to 55-pounds capacity. A five pound recycling kit lasts an average household about six months or longer.</span></span></div>
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<span style="color: black; font-family: Calibri,sans-serif; font-size: small; line-height: normal;">According to the </span><a href="http://www.epa.gov/osw/conserve/materials/battery.htm#batteryrecycle" style="color: #0068cf; cursor: pointer; font-weight: inherit; line-height: 22.7199993133545px;" target="_blank"><span style="font-family: Calibri,sans-serif; font-size: small; line-height: normal;">Environmental Protection Agency (EPA)</span></a><span style="color: black; font-family: Calibri,sans-serif; font-size: small; line-height: normal;">, button-cell batteries </span><span style="color: black; font-family: Calibri,sans-serif; font-size: small; line-height: normal;"><span style="line-height: 22.7199993133545px;">found in items such as watches and hearing aids contain mercury, silver, cadmium, lithium, or other heavy metals as their main component. </span></span><span style="color: black; font-family: Calibri,sans-serif; font-size: small; line-height: normal;">Recycling batteries keeps heavy metals out of landfills and the air. </span><span style="font-family: Calibri,sans-serif; font-size: small; line-height: normal;">Once in a landfill, rain water steeps through the waste creating leachate, or a toxic soup, which can enter</span><span style="font-size: small; line-height: normal;"> the groundwater and even end up in the domestic water supply. </span><span style="font-family: Calibri,sans-serif; font-size: small; line-height: normal;">Recycling batteries not only prevents these hazards but saves resources because recovered plastic and metals can be used to make new batteries. </span></div>
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<span style="font-size: small; line-height: normal;">Battery Solutions serves a variety of customers from the single household to businesses of all sizes, again, taking all types and chemistries. In 2014, </span>responsible <span style="font-size: small; line-height: normal;">people and businesses allowed Battery Solutions to collect 40 million pounds of batteries to recycle! These recycled batteries are turned into materials that create: new batteries; steel – which could help build your next car; micronutrients – used in fertilizer; and so many other materials that will sustain our lives in the centuries to come and are not harming us by being put in a landfill. </span><a href="http://www.earth911.com/" style="color: #0068cf; cursor: pointer; font-weight: inherit; line-height: 22.7199993133545px;" target="_blank"><span style="font-size: small; line-height: normal;">Earth911</span></a><span style="font-size: small; line-height: normal;"> is another great resource for finding out how to recycle everything, including your batteries. </span></div>
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<span style="font-family: Calibri,sans-serif; font-size: small; line-height: normal;">Just like the medical community is not fully educated on the dangers of button cell battery ingestions, laws haven’t kept up with what we know can harm the environment. They are starting to catch up – it is illegal to throw batteries in the trash in California and other states like New York and Vermont are setting these types of recycling precedents too. Next time you are wondering what do with your spent batteries, think twice about tossing them in the trash, not only can kids and pets still find them there, it’s not good for the environment. Besides, it’s pretty cool old batteries can be turned into something useful for a second life. </span></div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com3tag:blogger.com,1999:blog-6606577839165174950.post-64764655083259399802014-07-30T21:55:00.002-07:002014-07-30T21:55:55.866-07:00Be on ALERT for LAUNDRY SOAP PODS!<div style="text-align: center;">
As technology advances, we as consumer's become excited to purchase the new latest and greatest items. This also goes for house hold cleaner's. Pediatrician's educated parent's about the danger's of cleaning supplies if consumer by a child and advise, for cleaner's to be placed up high out of little arms reach or behind a child proof cabinet. However, what about these cute little tiny pods?!?!</div>
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The little laundry pods are cute, less messy, easy to use and have great reviews... </div>
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Just as there is a laundry list of appealing reasons for parent's to purchase the tiny packages of soap, little curious eyes may have their own list of idea's why these cleansing pods may look attractive. Colorful, shiny, squishy, smell yummy... At the young and tender age of a toddler, the oral stimulation is quite alive and inquisitive. (We have learned with our research of toddler's and button battery ingestion.) Children are curious, if the item looks attractive, they will put it in their mouth. The problem is... these laundry soap pods are TOXIC! I have heard more and more stories about little one's ingesting these little cleaner's, I wanted to send a friendly note to parent's and caregiver's to be AWARE of these items in your home!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com1tag:blogger.com,1999:blog-6606577839165174950.post-85635540208060768912014-07-26T09:02:00.000-07:002014-07-26T09:02:10.188-07:00Cancer Benefit for Malina<div class="separator" style="clear: both; text-align: center;">
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Malina, The Rauch Family is routing for you and our faith and prayer's are with you to fight this great battle!</div>
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Go Malina, Go!</div>
<br />Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com2tag:blogger.com,1999:blog-6606577839165174950.post-72954137306489085672014-05-08T16:53:00.005-07:002014-05-08T16:54:56.402-07:00Mother's Grace Benefit Brunch<div class="separator" style="clear: both; text-align: center;">
Thank you <a href="http://mothers-grace.org/" target="_blank">Mother's Grace</a> for generously gifting <a href="http://emmettsfight.com/" target="_blank">Emmett's Fight Foundation</a> with our first ever GRANT!</div>
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I am so grateful for the opportunity to be the guest speaker today, to a group of two hundred beautiful ladies this morning at the Mother's Grace 5th Annual Benefit Brunch. It was a delightful and emotional experience. I was able to share Emmett's and Ethan's journeys, provide awareness to those in the audience about the danger's of button batteries, share why Michael and I started our Foundation and what our goals are in this movement. It being Mother's Day weekend, I was able to be accompanied by my wonderful Mother, Mother in law and one of my best of friends, Wendy.</div>
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<span style="font-family: inherit;">What is Mother's Grace?</span></div>
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<span style="font-family: inherit;">"Mother's Grace foundation is dedicated to the support of Mothers and children who have endured life tragedies. By providing financial support and guidance, Mother's Grace empowers these women to reach their goals of making a difference in their communities by helping others inflicted with similar circumstances." (from: mother-grace.org) find them on <a href="https://www.facebook.com/pages/Mothers-Grace/196458780398320" target="_blank"> Facebook</a></span></div>
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Michelle Fanger President and Founder of Mother's Grace.</div>
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(left to right) Wendy, Roxie (mother in law), Myself and Karen (my mother)</div>
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I feel so blessed to have my Mother's love and support! She has held my left hand while Michael has held my right through these past years. She has taught me to be strong, no matter how dark the storm may be. She is MY advocate. She is my biggest fan as Michael and I work towards creating a safer world!</div>
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Wendy has been with me through the thick and thin and has an incredible story of her own. She is one of my biggest cheerleaders and I am so grateful for her passion in helping to spread the awareness about Button Batteries!</div>
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Michael's Mom has been a great support in many ways to our little family. She is a nurse by trade and has helped sit in during many difficult conversation Michael and I have had with Physicians. I am grateful for her listening ears.</div>
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Happy Mother's Day to all of you wonderful Mother's!!!</div>
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<br />Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com2tag:blogger.com,1999:blog-6606577839165174950.post-35724210105587100112014-04-18T09:40:00.003-07:002014-04-18T09:50:22.109-07:00The Real Live Batcave!<div class="separator" style="clear: both; text-align: center;">
Mr Bruce Wayne heard about Emmett and Ethan. He contacted me and said because of the two boys bravery that he would like to invite them to an exclusive tour of his private Batcave here in Phoenix! I was told to keep this a secret until the boys arrived for the tour. Mr Wayne sent his private Limousine to pick up our family and drive us to his facility. The experience was something I know our family and my boys will never forget...</div>
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I got special permission to share our incredible experience:) </div>
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Mr Wayne wanted the boys to be able to share this experience with their friends, who will also attest to the amazing experience!</div>
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The tour started in Mr Wayne's famous office (an exact replica of the 1960's Batman series). From the the antelope head on the wall, to the wallpaper, the Shakespeare head and the hidden door bookcase, Mr Wayne's office was quite Original!</div>
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The crew received special instruction from Mr Wayne and Batman.</div>
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Ethan and Emmett didn't particularly like the sight of the Joker.. He is pretty creepy!</div>
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The head of Shakespeare held the "green button" to allow us to enter the exclusive Batcave! </div>
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A fire pole was mandatory to slide down to enter the cave...</div>
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Once we entered the Bat-cave, the kids were were free to roam around and explore Mr Wayne's latest and greatest technology</div>
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Mr Wayne created this cave in honor of Colten Cowell, a true hero! </div>
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Even the adults enjoyed exploring the Batcave;)</div>
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A fact I didn't know about Batman... He has a Batman Mobile Parachute Pick up Service. Hilarious!</div>
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A special report came in stating that Batman needed help to save Gotham city. The kids were called to action and were able to ride in the Batmobile and motorcycle.</div>
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Even I was able to catch a ride in the Batmobile with my long time friend Brandy and her son Tucker.</div>
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Mr Wayne is not only generous to allow us to bring our friends and tour the Batcave and ride his famous Batmobile, he also donated to two local charities we know and love! Thank you Mr Wayne for making my boys dreams come true! Thank you Room for Joy for nominating our family for this special experience! We are so grateful and feel so blessed!</div>
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Charities: </div>
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<a href="http://roomforjoy.org/" target="_blank">Room for Joy</a></div>
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<a href="http://wyldernation.org/" target="_blank">Wylder Nation</a></div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com1tag:blogger.com,1999:blog-6606577839165174950.post-26427421734157893052014-04-07T17:02:00.000-07:002014-04-07T17:02:04.122-07:00Ethan's Story!<div style="text-align: center;">
Oh boy! Life certainly has it's unpredictable moments....</div>
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I am so happy to be home under one roof as a family once again. Our oldest son Ethan, my strong vibrant and healthy one, fell critically ill with a rare form of Encephalitis. He was hospitalized for 4 weeks, 10 of those days he was in the rehabilitation unit re-learning how to speak, eat, move his head, arms, legs, walk, manage pain and much, much more.</div>
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Michael and my fears as parents were so profound, it was difficult for either of us to control our emotions, eat or even sleep. We felt vulnerable and helpless. What did this mean for our beautifully bright son, who loved to play soccer, read, wrestle with his brother, eat us our of the house with his ever growing appetite, jump on the trampoline, play lego's with his friends for hours on end? It seemed lost, and even uncertain what would become of our sweet little boy once he woke up from the state of unconsciousness that he put himself in.</div>
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I have had many people say to me in love and the utmost concern, "why is your family going through this, why Ethan". I don't know why and I am not sure I will ever fully understand, but I know that we must have "opposition in all things" in life to fully understand and appreciate the joys life brings. I have learned that through out life's experiences we are able to grow, develop and become who we are suppose to be. I have learned, among many other things, to look at life as a special gift. To cherish, family, friendships and simple moments. To be kind to others and share with those around me what is most important in life, God! </div>
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I had a LONG talk with my Heavenly Father, right when Ethan was admitted, I knew I was NOT alone. Michael and I are still amazed at the outpouring of LOVE, support, comfort and remorse shown by those in our family, church and community. I know this was how God was answering our prayers, through the love and service of other people. The PICU staff were impeccable! They were quick to test, treat and relieve Ethan's condition. We knew they would, for these were the same Physicians, Nurses, Respiratory Therapist, Tech, Rehab therapists and Child Life who helped our family fight the hard FIGHT for Emmett. It was nothing short of a miracle as the Neurologist was able to quickly diagnosis Ethan with the rare disease and start treatment before it was too late. </div>
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After a few weeks Ethan had a remarkable turn around, the only way best to describe it is as if a "light switch" was turned on. One day he started talking, wanting to walk with his walker and eat. It was incredible! The Physicians and therapist alike couldn't believe this recovery. I know the answer: It was a true MIRACLE and answer because of faith from prayer. He came home 10 days later. He is doing beautifully and currently has 4 therapies each week outside the home. </div>
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Tomorrow is a big day for Ethan, he is returning to SCHOOL! He will attend for an hour and a half each day until the end of the school year. There are several area's were we can tell the swelling on the brain is still present, but the Doctor hope that with in 4-6 months Ethan will be fully recovered! That is what our family is praying for!</div>
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I wanted to share this intimate experience, because I know that our family is not the only family going through various struggles and trials. I am sharing Ethan's story to hopefully bring light and hope for those enduring a difficult time! God is real! He hears you and will answer! Not always in the way we expect it, but he WILL answer when there is faith!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com3tag:blogger.com,1999:blog-6606577839165174950.post-38469666568874300492014-02-27T15:14:00.001-08:002014-02-27T15:14:56.523-08:00<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18px;">Dearest Emmett's Fight supporter's,</span><br />
<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13.333333969116211px; line-height: 18px;">I am writing you to express that I will be absent from posting and responding to messages on facebook, blog and email for the next few months. Our oldest son Ethan has become critically ill. Michael and I ask for respect of our families privacy at this time as we are coping with this difficult time. Please know we will be back to spreading awareness as soon as we can. Thank you for respecting our wishes at this time!</span>Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com2tag:blogger.com,1999:blog-6606577839165174950.post-25367945757319147372014-01-23T15:08:00.002-08:002014-01-23T15:08:36.286-08:00Good News Day!<div style="text-align: center;">
Do you ever have those days were you just want to jump for JOY???</div>
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Well that is how I am feeling right now after receiving great news from Emmett's GI Doctor, Dr McOmber.</div>
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For the past eight months, every 2-3 weeks, Emmett has been going into Phoenix Children's Hospital for a outpatient procedure called an <a href="http://en.wikipedia.org/wiki/Esophageal_dilatation" target="_blank">Esophageal Dilatation </a>. The reason for the dilatation's is because the area were the "new" esophagus and the old esophagus were sutured together created a <a href="http://en.wikipedia.org/wiki/Esophageal_stricture" target="_blank">stricture</a> making it difficult for Mr Emmett to swallow.</div>
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Two weeks ago, during the routine esophagus dilation, Dr McOmber spotted an area of "concern" a possible <a href="http://en.wikipedia.org/wiki/Fistula" target="_blank">fistula</a>. Which is a nightmare... A few days later another procedure was performed to determine if that "area" was leaking to Emmett's chest. The test ruled out NO such passage way. Phew!</div>
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For the good news!:</div>
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Today Emmett's esophagus was dilated to the desired diameter and did not shrink back to a smaller measurement. Also, the "area of concern" from two weeks before was no longer there! Thank you Father in Heaven! So Emmett's dilation's will now be spread out to once a month instead of every other week!!!. As long as the esophagus doesn't shrink back to a smaller diameter, then the dilation's will continue to spread out over time even more. Hooray for MIRACLES! </div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiXwYiaTqx9AYMcJM4QRj9n987IfDxhVMxf_Rx2yzwUgHcg8BVkJRtcMkIFgEnIWrG5eDGSUncQ7ycQxeJnvAiRZXuMNFs0sl_siavtrHZKyVzmBq_XpnVfweJnkbwH-8NaHH0dnlo8rM/s1600/20140123_154618.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgiXwYiaTqx9AYMcJM4QRj9n987IfDxhVMxf_Rx2yzwUgHcg8BVkJRtcMkIFgEnIWrG5eDGSUncQ7ycQxeJnvAiRZXuMNFs0sl_siavtrHZKyVzmBq_XpnVfweJnkbwH-8NaHH0dnlo8rM/s1600/20140123_154618.jpg" height="300" width="400" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">(site of the stricture in the esophagus)</td></tr>
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I am so thankful for all the many blessing and miracles we have received!</div>
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Go Emmett, Go!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com3tag:blogger.com,1999:blog-6606577839165174950.post-14039398330233765892014-01-06T20:09:00.000-08:002014-01-06T20:09:14.904-08:00Tell your story: Sophie's Story<div style="background-color: white; color: #444444; font-family: Calibri; font-size: 16px; line-height: 22px;">
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" 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I received an email from a mother whose daughter suffered a serious injury from a button battery. However, the injury occurred not by ingesting the button battery. We are so grateful for the many parent's who trying to make a difference by sharing their difficult journey in trying to save other children's lives.</div>
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<span style="font-size: x-large;">Sophie's Story:</span></div>
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Graciously shared by her mother Shea</div>
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"Sophie put a button battery in her nose in January on a Sunday afternoon. I took her to Urgent Care that same day. The doctor tried to remove it (as we all held her down). He said he heard a clink but refused to do anything else. She had to see an <i>Ears, Nose and Throat Doctor </i>(ENT). That night was one of the worst nights of my life. We did not know what she put in her nose, so when she would scream uncontrollably we would just do our best to console her. Needless to say, she was being shocked and we didn't know it. When the ENT saw her the following afternoon we held her down AGAIN�and he looked with his microscope. All he saw was bodily fluids surrounding the item�he didn't see the battery. She was scheduled for surgery the next morning. So, that night was worse than the night before�she was exhausted and feverish. She was just moaning non-stop. I just held her and rocked her.</div>
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When the ENT came out of surgery he was stunned. He had no idea that it was a battery. Not only was she being shocked, the battery was cracked and was leaking battery acid. She had 3rd degree burns. She was in danger of separating her septum as the burns were severe.</div>
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We had nightly treatments that haunt me to this day. I had to hold Sophie and flush her nostril three times and follow with a think anti-biotic cream. She would scream! She was on antibiotics for 4 months. She had to have surgery every two-three weeks. It got to the point that the nurses and anesthesiologist all her knew her by name. Her hospital stays lasted about 4 months total.</div>
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We are still recovering physically and emotionally. Every time she has a stuffy nose she screams. It is difficult to tell whether or not the congestion is uncomfortable or if there is a real problem. I am not sure if she will have to have any additional surgeries. Time will tell. The ENT believes that we may have saved her septum. There was a time that we almost had to go to Children's Hospital in Birmingham to have reconstructive surgery planned. The ENT gave it one more week with extra flushing and ointment. It seemed to slow down the scarring.</div>
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I wish the battery makers would consider making a battery that was not as toxic and the button battery."</div>
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Thank you Shea for sharing Sophie's story. We pray for her continued recovery! Go Sophie, Go!</div>
Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com1tag:blogger.com,1999:blog-6606577839165174950.post-12712601022439054362013-12-01T22:05:00.001-08:002013-12-01T22:05:51.856-08:00Coin Lithium Battery Safety Video<div style="text-align: center;">The National Safety Counsel and Energizer are reaching out to spread awareness about the danger's of button batteries in the home. They suggested <span style="font-size: large;">4 S's</span> to remember: <span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 18px;"><span style="font-size: large;">Store, Select, Secure and Share </span>to help keep your home safe.</span></div><div style="text-align: center;"><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 18px;"><span style="font-size: large;"><br />
</span></span></div><div style="text-align: center;"><span style="color: #333333; font-family: lucida grande, tahoma, verdana, arial, sans-serif;"><span style="line-height: 18px;">Take a moment and share this video with your family and friends!</span></span></div><br />
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-38391982610426075772013-11-21T20:48:00.002-08:002013-11-22T08:28:30.894-08:00Awareness Alert! Hearing Aids<div style="text-align: center;">
I receive emails and private messages on a daily basis, of different peoples experiences or interactions with button batteries. I am so grateful that so many of you are taking this issue seriously and are helping our family spread the word. Over the past month I have had several reader's write to me about Hearing Aids. Hearing Aids are used for individuals mature and young in life. The issue is, how the button battery is housed and stored in the hearing aid devise. Some manufactures compartmentalize the button battery so it is difficult to remove. A pain to open for some I am sure, but when the hearing aid is used by a small child, the extra effort to remove the button battery is essential for their safety.</div>
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With her permission, I want to share an experience and concern my friend Cindy wrote to me about. Here is what she wrote:</div>
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<span style="background-color: white; color: #333333; font-family: Arial, Helvetica, sans-serif; line-height: 14px; text-align: left;">"I have been meaning to contact you about my daughters hearing aids. I thought if you contacted the company it would maybe make a larger impact then just me a parent that's frustrated with a design flaw in this otherwise great hearing aide my daughter wears. Tabitha got these new hearing aids recently they are made by the same company as her old hearing aides. Her old hearing aids had a white tab on the inside to hold the battery in place when the battery compartment is opened. The new hearing aids do not have this and I would say that 80% of the time when we open up the battery compartment on these new hearing aids the battery often falls out on the ground and because it's a small button battery (size 13) it can be very hard to locate especially if it falls on the carpet. We have even had this same issue when we have had to open the battery compartment at church and the battery falls to the ground and bounces around on the wooden floor and it's hard to locate. I worry for any little child that might find it and put it in their mouth like they like to do at that age. </span></div>
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<span style="font-family: Arial, Helvetica, sans-serif;"><span style="background-color: white; color: #333333; line-height: 14px; text-align: left;">I would love it if you could bring this issue to the attention of Phonak. I think they would be more likely to give this attention after hearing of Emmett's story and your awareness campaign. </span><span style="background-color: white; color: #333333; line-height: 14px; text-align: left;">Thank YOU"</span></span></div>
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Unfortunately many manufactures are unaware of the issue of button battery ingestion with small children. At least I hope that is their excuse in why they are not making an effort to house these tiny batteries in a more appropriate manner.</div>
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I am hoping to be able to reach out to someone at Phonak to shed light on this safety issue. I am just praying I will come in contact with someone who will find urgency in this matter and make a change in the design. Wish me luck!</div>
Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-71349327954361354112013-10-31T08:47:00.000-07:002013-10-31T08:47:04.878-07:00Colin's New Esophagus!<div class="separator" style="clear: both; text-align: center;">
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Meet our friend Colin! This sweetie pie is currently in surgery today at Cincinnati Children Hospital. He is undergoing the same surgery Emmett had performed almost one year ago. Using the colon to replace, in Colin's situation, create an esophagus. </div>
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I met Colin's mom through facebook. The surgery is unique and rare therfore there is only a small population of patients and families who have undergone this particular surgery which is called a Colonic Interposition. Colon's mom has shared with me a little about Colin's diagnosis and condition:</div>
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"<span style="background-color: white; color: #333333; font-family: inherit; line-height: 14px;">H</span><span style="font-family: inherit;"><span style="background-color: white; color: #333333; line-height: 14px;">e has long gap esophageal atresia and he also had a</span></span></div>
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<span style="background-color: white; color: #333333; font-family: inherit; line-height: 14px;">tracheoesophageal fistula which was surgically repaired when he was 2</span><span style="background-color: white; color: #333333; font-family: inherit; line-height: 14px;">days old. Essentially, he was born with an abnormal connection between his lower esophagus and his windpipe. His upper esophagus ends in a blind pouch just below the back of his throat. The gap between the ends of the esophagus are usually short enough that they are repaired shortly after birth- but the gap in Colin's ends was 6.5cm and is now 3cm- but still too far apart to attach naturally- hence the segmental colonic interposition that he will be having done at </span></div>
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<span style="background-color: white; color: #333333; font-family: inherit; line-height: 14px;">Cincy. </span></div>
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<span style="font-family: inherit;">Colin also has VACTERL association. it is a non-random association of birth defects. Each letter stands for a different birth defect. Colin has V C T E R L.. He also has a cleft lip which is not associated. So he has a long road and fight ahead of him even after this first surgery. It's likely he will have at least 6 surgeries before his first birthday".</span></div>
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<span style="color: #333333;"><span style="line-height: 14px;">This little guy and his family could sure use some faith and prayers in their behalf today. We are so grateful for the many endless prayers for Emmett's surgery last year. We know the reason for Emmett's positive out come, is because of the many prayers sent to our Father in Heaven in his behalf. Thank you! Help us strengthen their family through faith for Colin today and the next several weeks for a safe recovery.</span></span></div>
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<span style="color: #333333;"><span style="line-height: 14px;"> Go Colin, Go!</span></span></div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-62240569816778335672013-10-21T21:10:00.002-07:002013-10-21T21:16:36.168-07:00Have you met Michelle?<div style="text-align: center;">
I would like to make a tribute to a very special person in our families life. She has been with our family through the thick and thin. In the darkest hours of my life, she was a guardian angel that helped me know I have a Father in Heaven who loves me.</div>
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Three years ago yesterday, October 20, 2010, Michelle came into our lives. She was the Pediatric Intensive Care Unit nurse who cared for Emmett the day after he had the button battery removed from his poor little esophagus. I still remember talking with her the first time she came into Emmett's room. There was something about her, a light that I desperately needed. Emmett had coded (code blue) the previous night. The doctor's in the PICU were uncertain of Emmett's condition and whether he would survive the hideous accident of ingesting a button battery from the remote control of our DVD player.</div>
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I remember feeling life-less, empty, terrified and desperate for a miracle. My dad came to be by Emmett and my side. Michelle, noticing my defeated body language, suggested I take a walk outside. I remember looking at her and thinking, "lady are you seriously crazy. My child is hanging on for dear life and you are suggesting I take a walk." My sweet dad looked at me and nodded for me to leave the room and get fresh air. </div>
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So I did, I remember walking down the south sidewalk of the old Phoenix Children's Hospital with tears streaming down my cheeks. The sounds of construction, worker's, machines and tractors were all swirling around in my head. I needed to escape. I began to pray... and I needed to pray there and then... I started to pray out loud. At that point I didn't care who heard me, I needed the love of my Father in Heaven to surround me. I needed Him to wrap me in the arms of his love! I can not recall how long I was walking for, but I remember coming to a point of exhaustion. I sat on the side of a parking lot wall. I noticed that all the noises of the world that were filling my heard before, seemed to be silent. Every worldly noise except for one little gentle sound... I looked slightly to my right to see what was making such a sweet simple noise. It was a little sparrow. </div>
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At that point I laughed inside of myself. This beautiful little bird is a creation of our loving God, I started to realize that just like that bird our Father in Heaven has created and is in charge of all things. I knew that my Father in Heaven loved me and that there was only one other person who understood my heart ache and Emmett's pain... It was my Savior.</div>
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To this day... I have a special place in my heart for Sparrows.</div>
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I came back to the room in the PICU were Emmett was medically sleeping. I thanked her for helping me to "get out of the room". Right then and there I asked her if she would be willing to be Emmett's primary nurse. I am sure she was shocked by my forwardness, but she smiled and said she would love too.</div>
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There was plenty of rough days ahead for Emmett. He struggled for life most of that year. Michelle was always so gentle and loving with Emmett. When Emmett's face would wince with pain, Michelle would stroke his distressed forehead and place a little stuffed animal right next to his face, arm or hand. </div>
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Although Emmett was fully medically sedated for months, Michelle recommended that I sing to him, read stories or just talk to him. She stated that although his body was not responsive that he could still hear my voice. I remember a time when Emmett was in a lot of distress, as Michelle and other medical staff were rushing to his aid, Michelle desperately said, "Karla talk to him, he needs you". With tears running down my face, I began to sing him a Primary song, a song about Jesus. There were so many moments that year I felt hopeless as a mother. My child was suffering and I could not cuddle him or take his pain away. I am so thankful for Michelle, encouraging me to speak to him. Those simple acts made me feel as if I could still be a mother even though so much was out of my control. Thank you Michelle.</div>
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That year it was difficult for everyone in the family. Ethan would come to visit his brother in the hospital. Michelle always made an extra effort to help Ethan feel secure and comforted when he saw his brother laying sick and helpless in the hospital bed. She took the time to explain to Ethan what each of the wires were for and why he needed them. To my surprise his little 3 year old mind seemed to grasp it. Amazing. There were plenty of days, I just simple needed a hug, chat or reassurance. I am so thankful she was there!</div>
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Michelle helped me start the Emmett's Fight Foundation. She, Michael and I brained stormed ideas for several weeks on what we could do to prevent another child from suffering like Emmett has. She is now a board member of our campaign! She helped give me the confidence to speak out to anyone who would take the time to listen. Before Emmett's accident, I would have never spoken to large groups let a lone a News station. When I wanted to run the opposite direction because of insecurities and fears, she helped me remember that I have a "voice" that needs to be heard! Michelle has a phenomenal family: Michael, David, Aidan, Keali and Jameson. Thank you for sharing Michelle. We love you Michelle! Thank you for changing our lives for the better! I hope you know you are stuck with us now forever. Thank you for being such a terrific nurse and a loving friend!</div>
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- We all LOVE you!</div>
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Karla, Michael, Ethan and Emmett </div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-81580679879986094862013-10-20T20:39:00.001-07:002013-10-20T20:39:25.450-07:00Cincinnati, Ronald McDonald House and a Big and Little Emmett<div style="text-align: center;">
We are here in Cincinnati once again. Cincinnati has been a positive experience for our family. Michael and I discussed how we actually look forward to coming out to Ohio. </div>
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Emmett has become quite the frequent flyer and is a fabulous flyer... He fell asleep at departure and ended his little siesta during the landing. I was able to get in a little reading time, it was quite enjoyable.</div>
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"Brown bear", so Emmett calls him, came along for the journey too. Emmett was tired of holding him so he set him down. I thought it was a pretty clever spot,</div>
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I want to thank all those who make it possible for Emmett to receive his medical care here in Cincinnati; our wonderful families and sweet, sweet Cherril Knight. We love you and thank you all so very much! Ethan I can't wait to come back and snuggle you oh so tight!</div>
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Emmett has a busy week filled with clinic appointments, scopes, sleep studies and procedures. We are anxious to meet his surgeon, Dr Von Allman, again tomorrow morning. This is the first time since surgery last December, Emmett had his esophagus removed a replaced with a portion of his large intestine, that he has seen Emmett. I am so excited for him to see the progress that Emmett has made over the past ten months home in Phoenix. Emmett truly is a different kid physically. It is incredible. We are so grateful for our loving Heavenly Father.</div>
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Our family has the opportunity to Stay at the Ronald McDonald House this trip. Ethan was not able to come with us this time because of his school schedule. He was so disappointed to be missing out on the Ronald McDonald House, he had such a wonderful experience here last winter.</div>
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Emmett spent an hour this evening playing with many of the toys in the activity room.</div>
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Emmett made a new friend today...Emmett!</div>
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Emmett works for the same company as Michael and has become a great friend and mentor. He and his family, Toni, Emmett (Trey) and Sean have been following Emmett's story over the past couple of years. Our family was able to meet up with Emmett here in Ohio. Thank you Emmett for the nice visit and your kindness!</div>
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We are so grateful for the many people who continue to pray for little Emmett and his recovery. Prayers are continuing to be answered as our family witnesses the miracles our Father in Heaven has poured down upon us. Thank you all for your faith!</div>
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Go Emmett, Go!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-58375211902340244522013-10-08T03:00:00.000-07:002013-10-08T13:37:38.606-07:00Wylder...<div style="text-align: center;">
Our family met someone this evening who has deeply touched my heart. A sweet mother of a young and precious warrior named Wylder. Last year Wylder was sent home to our loving Father in Heaven at a young and tender age. His short little life however, was triumphant and he showed the world, through his sweet little smile, how to be a more beautiful and peaceful place.</div>
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I have a new hero, Wylder's parent's. After reading his mother's blog and her two recently published children's books, my heart was filled with laughter, joy, heart ache, hope and love. Although I know it must be difficult, I am grateful for this families openness to share their journey of their precious Angel with us all. This families story is beautiful and uplifting. Their faith and optimism is inspiring. On the home page of the blog Wylder's mother Shannon beautifully describes her love for her son.</div>
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Take a moment to be inspired by this incredible family.</div>
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<a href="http://wylderjames.com/home" target="_blank">Wylder James Blog</a></div>
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Shannon has written and illustrated two children's books dedicated to her son, <a href="http://shoptogive.wylderjames.com/" target="_blank">Little Wish and Warrior Baby</a> We had the privileged of reading them to our boys this evening. Our family was moved by the message.<br />
Shannon and her husband have also started a non for profit foundation dedicated to raising awareness and research for <a href="http://www.nnpdf.org/" target="_blank">Niemann Pick A disease</a>. </div>
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Thank you Shannon for touching our lives. Thank you for teaching us what is truly important in life! Our prayers are with you. God Speed!</div>
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- The Rauch Family</div>
Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-23476953225492390912013-10-02T08:48:00.001-07:002013-10-02T12:20:36.405-07:00Birthday picture winner is.....<div class="separator" style="clear: both; text-align: center;">
And the winner of the Emmett's birthday picture is....</div>
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All of them! Our family just LOVED them all we couldn't choose just one. (How do you know I am a mother of small children? When everyone is a winner;))</div>
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The boys were full of giggles while viewing all of the photo's you all submitted. I had a few tears just seeing all the love and support that surrounds us. Thank you!</div>
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Most smiles that came from our family... Love the Energizer Bunny and the puppy! Beautiful family!</div>
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Wonderful nurse who helped calm Emmett's mommy's nerves before his helicopter ride to Phoenix Children's. Thank you!</div>
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Most tears coming from Emmett's mommy! We sure love Dr Egan and his wonderful staff!</div>
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Gucci and KW... need I say more... Adorable!</div>
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<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWdrbtdtCxMDcPyFl55_4141uGdpjRikc2Hs0aWw_W9MdXUgkdZILHtQaYcJzNWpcSg5zkBqfsUbX-NwSfmpv2vyDfK1zWf9-qRbPvNZ05b0woUJ9GuOWBDDPAvUWNYnD1UoiZhKKR5OQ/s1600/1272087_10151717172816633_1220555000_o+(1).jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWdrbtdtCxMDcPyFl55_4141uGdpjRikc2Hs0aWw_W9MdXUgkdZILHtQaYcJzNWpcSg5zkBqfsUbX-NwSfmpv2vyDfK1zWf9-qRbPvNZ05b0woUJ9GuOWBDDPAvUWNYnD1UoiZhKKR5OQ/s320/1272087_10151717172816633_1220555000_o+(1).jpg" width="240" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;">Michael... Emmett is his super hero!</td></tr>
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Most adorable Walton's</div>
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Here is a sweet little guy. His mom sent this picture all the way from Maldive Island which is all the way over in the Indian Ocean. So cool! I love that he is sporting his green for Emmett. Thank you! </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGvrhGDJ3U0RvZqZ_Vpe0JHDZ4K4HoDkYVK5mj1mV5NOMS-AtIB2GlROQKhClbTTy0KUj0Vb-QtuknaAQeBJlVYsw2QFiX-D5iV0AyGEAzHWzbepWTyp88ail35ygqZPf4huzfUpXNJOY/s1600/1354046_10151661602792011_2087941_o.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiGvrhGDJ3U0RvZqZ_Vpe0JHDZ4K4HoDkYVK5mj1mV5NOMS-AtIB2GlROQKhClbTTy0KUj0Vb-QtuknaAQeBJlVYsw2QFiX-D5iV0AyGEAzHWzbepWTyp88ail35ygqZPf4huzfUpXNJOY/s640/1354046_10151661602792011_2087941_o.jpg" width="640" /></a></div>
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Most incredible cake!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxRazJR9Gb-8-OCdIPNXHcA7gclfq025f49ev1deJ8aTfPOUftg4MCHutJ_ozf43BpPBxS6zuxI2h0GaCP7wYfvMABXIz-QnDG5boaR5fIZ1XZLUTvGSiVYFrcSWpH_72KyKvMJtzTxr8/s1600/1375086_10202343726498775_724824405_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhxRazJR9Gb-8-OCdIPNXHcA7gclfq025f49ev1deJ8aTfPOUftg4MCHutJ_ozf43BpPBxS6zuxI2h0GaCP7wYfvMABXIz-QnDG5boaR5fIZ1XZLUTvGSiVYFrcSWpH_72KyKvMJtzTxr8/s640/1375086_10202343726498775_724824405_n.jpg" width="426" /></a></div>
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Most adorable birthday lunch niece!</div>
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Most handsome!</div>
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Most creative!</div>
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Most adorable!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpfhiNZbXE_D6_iqwaeqTMlNTfTKvyXDR0rRUwoWjRdsG5W-ICq94pxfachM9hHgnKFRUJs20CwPvrF3tFMT946ChqZr-cK-2tWjT58shwYELtPNGQHFuWxk2UTTe71wbbmVtIWhyphenhyphenn9os/s1600/578540_538549819557341_675893934_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="640" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpfhiNZbXE_D6_iqwaeqTMlNTfTKvyXDR0rRUwoWjRdsG5W-ICq94pxfachM9hHgnKFRUJs20CwPvrF3tFMT946ChqZr-cK-2tWjT58shwYELtPNGQHFuWxk2UTTe71wbbmVtIWhyphenhyphenn9os/s640/578540_538549819557341_675893934_n.jpg" width="640" /></a></div>
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Most incredible nurse on the planet;)</div>
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Thank you all... Emmett had a terrific 4th birthday! Thank you for taking part in it!</div>
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Go Emmett, Go!</div>
Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-26683823303076999692013-10-01T00:00:00.000-07:002013-10-01T08:02:30.403-07:00Emmett's 4th Birthday!<div style="text-align: center;">
<span style="font-size: x-large;">....4....</span></div>
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I can not believe it! Emmett is 4 years old today and what a monumental day! </div>
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Four years ago, I met this little guy who was eager to come into the world at just 28 weeks gestation. It was an emergency C-section, which meant Michael and I had little time to come up with a final decision on a name. We chose Emmett because of how strong it sounded and it came from a Germanic origin. Rauch being a German name. The meaning of a name is important to us. While the nurses were prepping me for the C-section, Michael searched Google for the meaning behind the name Emmett.</div>
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Emmett: Strong, persevering, powerful and universal leader. </div>
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Wow! Little did we know as parent's then, what an impact this little life would have, not only to our family, but to the world!</div>
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Then...</div>
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Now!</div>
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It will take Emmett another 40 plus years to match up years to as many surgical procedures he has had performed over the past 4 years. I sure am grateful for the many miracles our Father in Heaven has performed for our little boy! We are so grateful for these blessings! Today we are going to celebrate!</div>
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In honor of our Emmett, today I want to reflect and give thanks to the many people who have impacted our lives forever... These people will forever have an lasting mark on our hearts for their time, service, love, sacrifice and energy they have shown our little boy and family. So let the list begin:</div>
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Dr Craig Egan</div>
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Dr Steven Nelson</div>
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Michelle Chacon-RN</div>
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Susie-NICU RN</div>
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Karen-NICU RN</div>
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Jan-NICU RN</div>
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Julie-NICU RN</div>
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NICU Nurse Practitioner's</div>
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Alicia- NICU message therapist</div>
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Dr Ellis- MD</div>
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Dr Abrams-MD </div>
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All the other NICU RN's and RT's who made a lasting impact on Emmett</div>
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All the INCREDIBLE <span style="font-size: large;">Intensivists MD's</span> at Phoenix Children's Hospital PICU</div>
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All of the wonderful<span style="font-size: large;"> Nurse Practioner's</span> at PCH PICU</div>
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(Cassie, BJ, Amy, Susan, Merideth, Kim and more)</div>
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Dr Lacy</div>
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Dr Tong</div>
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Dr McOmber</div>
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Dr Roa</div>
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Wendy Pauker- Child Life</div>
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Brie-RN</div>
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Arica_RN</div>
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Dixie-RN</div>
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Holly-RN</div>
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Kara-RN</div>
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Amy-RN</div>
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Grandma Sue-RN</div>
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Jen- Wisconsin;)-RN</div>
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Jen A.-RN</div>
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Ida-RN</div>
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Serena-RN</div>
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Megan-RN</div>
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Dr Wendy</div>
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Dr Shepherd</div>
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All the Respiratory Therapist in the PICU at PCH</div>
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All of the many other wonderful PICU nurses</div>
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All of the Pre and Post Operation nurses</div>
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Endoscopic nurses</div>
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OR nurses<br />
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Jen-PT<br />
Jackie-PT NICU<br />
Kristen-SP<br />
Monica-SP<br />
Kim-OT<br />
Sherryl Knight</div>
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Sharmain-RN</div>
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Lisa-RN</div>
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Sue-RN</div>
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Todd-RN</div>
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Dr von Allman</div>
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Marilynn Stoops</div>
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Dr de Alacon </div>
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Dr Wood</div>
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Becky L-RN</div>
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Dr Pointer</div>
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PICU RN's at Cincinnati Children's Hospital<br />
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Last but not least:<br />
Ethan<br />
Grandma and Grandpas<br />
Aunts and Uncles<br />
Cousins<br />
Sunrise Mountain Ward<br />
Dear, dear Friends</div>
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I know I am missing many incredible people/ Nurses who helped impact our lives, especially Emmett's. Please forgive me if I did not mention your name. Thank you forever and ever for working around the clock to help save Emmett's precious little life. We LOVE you! </div>
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Go Emmett, Go! </div>
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We love you sweet boy with all of our hearts!!!</div>
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<span style="font-size: x-large;">Happy Birthday!!!!!</span></div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com5tag:blogger.com,1999:blog-6606577839165174950.post-56556707245740166682013-09-30T03:00:00.000-07:002013-09-30T03:00:19.535-07:00Orange or Green for the Birthday Boy!<div style="text-align: center;">
<span style="font-size: x-large;">Emmett's 4th Birthday</span> is <span style="font-size: x-large;">tomorrow </span>October 1st!</div>
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I was thinking it might be fun to celebrate Emmett's birthday with you all.</div>
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Here are a few instructions on how you can help celebrate Emmett's birthday:</div>
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1. Wear<span style="font-size: large;"> Green, Orange, Grey </span>or an Emmett's Fight T-shirt or make a Happy Birthday sign for Emmett</div>
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2.<span style="font-size: x-large;"> Post a picture</span> of you wearing your Emmett's Fight colors on Emmett's Fight <a href="https://www.facebook.com/pages/Emmetts-Fight/115352658543728" target="_blank">Facebook Page</a></div>
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3. I will share it with <span style="font-size: x-large;">Emmett and Ethan</span> to let them <span style="font-size: large;">pick their favorite</span> photo. </div>
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4. Wednesday I will<span style="font-size: large;"> post</span> the favorite picture on the blog!</div>
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A few example below:</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRO4rk6ox4uDivudM7eVBPeCuKCljnL_4QdltvZhjvHNMD11otTr-plWJtb1-oyz-FoPsRLxdN15c_7i7RlKJ1xkyzTvcslApm6KcUaem00T3PgbZzeknihnuV3EL9biOpD_vE7sK_C48/s1600/429472_395425963869728_643534624_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRO4rk6ox4uDivudM7eVBPeCuKCljnL_4QdltvZhjvHNMD11otTr-plWJtb1-oyz-FoPsRLxdN15c_7i7RlKJ1xkyzTvcslApm6KcUaem00T3PgbZzeknihnuV3EL9biOpD_vE7sK_C48/s320/429472_395425963869728_643534624_n.jpg" width="320" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggH8ePFVdHSiSkSetaUCi-cFCXXxixh4GtrvwJHM10pwqnhwug4qbTKactW_3UT2amWuKGWn74LUI3hiIzrTGgBrxZaJluUWQqlcNoaMGL-AT3eWyqGYR9m5iIySi9uqja7FQc80idws4/s1600/14591_395877590491232_756942313_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggH8ePFVdHSiSkSetaUCi-cFCXXxixh4GtrvwJHM10pwqnhwug4qbTKactW_3UT2amWuKGWn74LUI3hiIzrTGgBrxZaJluUWQqlcNoaMGL-AT3eWyqGYR9m5iIySi9uqja7FQc80idws4/s320/14591_395877590491232_756942313_n.jpg" width="240" /></a></div>
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I am so excited to see all of the great pictures!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-36249924309565545842013-09-25T09:41:00.001-07:002013-09-25T09:42:54.730-07:00Button Battery Ingestion Awareness in Florida!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRSHe9w0cOQEkvmyJDaEW5rvXUWwetty6dy76SuAj-XYhrHpDnk4BPG9mbJZXn5VUdzEh2qrJ_Teti3p1n_DFCYJCrt2aHVlde9eTZote48HdcbDQKLlnibevlbKY06gF034MKx3j36VM/s1600/20130920_095452.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="480" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjRSHe9w0cOQEkvmyJDaEW5rvXUWwetty6dy76SuAj-XYhrHpDnk4BPG9mbJZXn5VUdzEh2qrJ_Teti3p1n_DFCYJCrt2aHVlde9eTZote48HdcbDQKLlnibevlbKY06gF034MKx3j36VM/s640/20130920_095452.jpg" width="640" /></a></div>
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This past weekend our family had the opportunity to venture down south to beautiful Orlando, Florida! Our family was asked to share our story about Emmett and the importance of keeping button batteries out of little one's reach for Child Safety Month. We hope all those who view the segment will recognize the importance of safe guarding their homes.</div>
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The neatest experience, Michael was able to do an entire interview in Spanish(he speaks Spanish fluently)! We hope to reach all families around the nation and hopefully one day much farther!</div>
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The segments will air this week! I will post the air-dates as soon as I am informed, otherwise they will be posted on youtube and then re-post them later in the week.</div>
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Emmett is now a pro at this interview business, by the 3rd one he kicked off his shoes and really got comfortable.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb8h2_WSJ7h6kIoGQM1RKJHTNU84yacthpIqV3HcHGhXNQQdjwD9bmnw5yfz8xDnYWdMYgPiNE48WpYY8u11VuaDZTm-EIx4PCcUGG9gwkTnIAp0ag8_w5QAFKs6JV2fJsc0HERbsImag/s1600/20130920_092452+(1).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="300" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgb8h2_WSJ7h6kIoGQM1RKJHTNU84yacthpIqV3HcHGhXNQQdjwD9bmnw5yfz8xDnYWdMYgPiNE48WpYY8u11VuaDZTm-EIx4PCcUGG9gwkTnIAp0ag8_w5QAFKs6JV2fJsc0HERbsImag/s400/20130920_092452+(1).jpg" width="400" /></a></div>
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After the interview were over, we set off to visit the Atlantic Ocean! It was so beautiful and the water was incredible warm. We are so used to California's cool Pacific water. I will take the warm water anytime, I actually got in it;)</div>
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Emmett collected sea shells while Michael and Ethan had fun riding the waves. I wish Phoenix had a beach....</div>
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On Sunday we took our boys to see the beautiful LDS Temple in Orlando. It was so gorgeous and the boys enjoyed the water fountain displays and chasing lizards</div>
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Ethan was quite the videographer. He took pictures and narrated our journey throughout the weekend. So sweet!</div>
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Our family LOVED downtown Disney! The ambiance was so magical!</div>
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First time Ethan and Emmett met Mickey! </div>
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We took the boys to Magic Kingdom! I LOVE Disney, sigh! All of my childhood memories just rushed back into my mind. The boys soaked it all up! They both said that their favorite ride was the Magic Carpet ride.</div>
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Emmett's expression right after meeting Mickey.</div>
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Ethan picked out some new shades while at Disney World. I can't believe it is Fall already. The park was decorated in charming Fall decor.</div>
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The Lego store is the boys favorite of all.</div>
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The last day the boys wanted to try miniature golf. It was fun but the humidity Florida has, goodness! I am so used to the dry heat of Arizona. It was a wonderful and much needed vacation for our family. I am so grateful for the opportunity our family had to continue to educated those in the community about button battery safety.</div>
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<br />Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-79011166313820545522013-09-12T16:41:00.000-07:002013-09-12T16:41:31.736-07:00A Rap about Emmett and Me!<div style="text-align: center;">
<span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">Here is a tribute to all of you "Trach Moms" out there. My Dad loves to write up poetry and today he said these words kept rolling over in his mind, so he decided to write them down and put it to a rap. So thank you to my Dad who notices the everyday craziness that happens in my home. Thank you for always being willing to help. I love you Dad! Thank you for thinking I am "awesome". </span></div>
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<span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">a – a – a – Awsommme!</span></div>
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<span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">Awsommme!</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">I know an awesome Mom!</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She used to be my girl,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">But now she's got two boys,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">And she know how to curl. </span><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; line-height: 21px; text-align: start;"><span style="font-size: xx-small;">(I am a hairdresser)</span></span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She does her own blog,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">And she’s on the TV,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She’s - got more hops,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">Than energizer bunny. </span><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; line-height: 21px; text-align: start;"><span style="font-size: xx-small;">(Battery Controlled)</span></span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;"> </span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">bo – bo – bo – bolusssss!</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">bolusssss!</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She knows all the hospitals,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She knows all the rules,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">The doctors better listen,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">Or she’ll take them to school.</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">She mixes up the food,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">And it looks kind of ikk,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">And if you need to suction,</span><br style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;" /><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; font-size: 15px; line-height: 21px; text-align: start;">Put your thumb on number 6! </span><span style="background-color: white; color: #444444; font-family: Calibri, sans-serif; line-height: 21px; text-align: start;"><span style="font-size: xx-small;">(The number we have to suction Emmett's trach)</span></span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">s – s – s – Suctionnnnn!</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">Suctionnnnn!</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">She has to watch the trach,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">What he eats, she has to see,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">And when he cracks smile,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">Emmett, where’s the H M E?</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">Two boys that like to wrestle,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">And get carried away,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">You get them off to bed,</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">And start again the next day!</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">Oh yea, she's Awesome!</span></div>
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<span style="font-family: Calibri; font-size: small; line-height: normal;">a – a – a – Awsommme! Awsommme!</span></div>
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<span style="font-family: Calibri;">-By Stan Thomasson</span></div>
Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com2tag:blogger.com,1999:blog-6606577839165174950.post-89355659612624874622013-09-07T05:00:00.000-07:002013-09-07T05:00:00.100-07:00An apology and a blog post WAY overdue!<div class="separator" style="clear: both; text-align: center;">
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Goodness! I have to apologize for the absent over the past month. What a whirlwind it has been, however a very exciting whirlwind and I am about to tell you all about it! </div>
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Mr Ethan started Kindergarten!!! I can't believe he is old enough for this exciting adventure. I of course was more anxious than he was and could not sleep the night before. I has a little worried that he would have some anxiety after dropping him off, but he rocked it like a champ! He said to me, " I got this, mom, I got this". He has a fabulous teacher who sends home daily emails about his homework assignments and how much she enjoys working with the kids in her class. She has been such a dream as a teacher, especially for a first time kindergarten mom;).</div>
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Ethan wears a uniform, which I am loving, and makes sure we are 15 minutes early to school each day. He watches the clock and when its time...we all better be in the car or else.... This has been a struggle for me since I am known for being "fashionably late" everywhere I go. But with Ethan's help, we have been "early" every morning since school has begun. Yahoo!</div>
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We have another school boy in our home! You guessed it, Mr Emmett! He is officially a preschooler and I am not hyperventilating. To be honest, I did sit in the first three weeks of school just in case he needed me:) I do realize that I am a helicopter mom, however I will forever justify my reasoning for it. Michael has told me I just need to work through it before he gets married, so I have about 30 years right?!?;)</div>
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He too has the most wonderful teacher! Emmett LOVES her and is so excited when it is time to go to school. Emmett also attends school with two of his best pals, Owen and Cooper. The first day of school, Cooper ran up to Emmett, grabbed his hand and said "come on Emmett, I show you around". Oh precious!!!</div>
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Emmett is also starting to wear a pasi muir valve (a one way valve) on his trach. The valve enables his voicing to be louder for others to understand him. He loves having a "loud voice". Evidence: He started yelling all around the house, laughs and says, "my voice is loud" and then giggles some more. Seriously, the simple things in life are the ultimate best!!!</div>
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So there is one more member of our family attending school that started this month. It is me! I did it! I have talked about going back for a few years now and I have officially done it. It will be a long journey, but my friend Kathy told me, "you are going to live the next ten years anyway, might as well go to school while you live it". Well said and needless to say, that helped me take the plunge and just do it. My goal is to be a Speech Pathologist and it will probably take me the next ten years but I am so excited about it! I know it will help me to have a better understand of Emmett and his life long challenges.I hope to be able to help families with similar situation as ours family and give back.</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibKek3ZBfp4sFtnQaWD2Cn3PDeH3vYrhhLuIbQdQdBcsX5vEiQApJzfsOpXU6MiyZmXimHQzGo-TsqeuwfiXLTSezQw_GVVB3WY6erOawh2TYcwgCI-kgYNQToKL7axQcbmU42I9vDZ0A/s1600/20130830_141630.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEibKek3ZBfp4sFtnQaWD2Cn3PDeH3vYrhhLuIbQdQdBcsX5vEiQApJzfsOpXU6MiyZmXimHQzGo-TsqeuwfiXLTSezQw_GVVB3WY6erOawh2TYcwgCI-kgYNQToKL7axQcbmU42I9vDZ0A/s320/20130830_141630.jpg" width="320" /></a></div>
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Last but not least for the month of August, our family said farewell to our home of eight and one half years. It has been bitter sweet. Michael and I have shared so many sweet memories of bringing our babies home and all the joys and laughter that family life brings... On the flip side there are many memories I am ready to leave behind and forget. The past three years of Emmett suffering and struggling, paramedic's filling the living room and many anxious and sleepless nights. Michael and I feel that now that Emmett is healing so beautifully that a move was a fresh start for our little family. Our family has stayed in the same area, for we sure love the community that surrounds us. So we say farewell old home, farewell...</div>
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Emmett's Fight has some new and exciting opportunities coming up in the near future and we are excited to continue to spread the word about button battery dangers. We are so grateful Emmett is thriving and we savor every moments we have together as a family!</div>
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Go Emmett, Go!</div>
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Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0tag:blogger.com,1999:blog-6606577839165174950.post-89991617796143888162013-08-08T08:47:00.001-07:002013-08-08T08:47:33.928-07:00Dairy Queen fundraiser for Phoenix Children's Hospital<br />
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<span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">Attention to all of our wonderful Phoenix </span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 18px;"><span style="font-size: large;">Emmett's Fight fans</span></span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">! Today </span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; line-height: 18px;"><span style="font-size: large;">Dairy Queen</span></span><span style="background-color: white; color: #333333; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;"> is teaming up to raise money for Phoenix Children's Hospital! Since it is still over 100 degree's outside, it's a perfect day to venture out and get a deliciou</span><span class="text_exposed_show" style="background-color: white; color: #333333; display: inline; font-family: 'lucida grande', tahoma, verdana, arial, sans-serif; font-size: 13px; line-height: 18px;">s Blizzard.</span></div>
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<span style="font-size: x-small;">Visit </span><a href="http://www.facebook.com/l.php?u=http%3A%2F%2Fwww.miracletreatday.com&h=6AQEUddq7&s=1" rel="nofollow nofollow" style="color: #3b5998; cursor: pointer; font-size: 13px; text-decoration: none;" target="_blank">www.miracletreatday.com</a><span style="font-size: x-small;"> for participating locations. Proceeds from each </span><span style="font-size: large;">Blizzard</span><span style="font-size: x-small;"> will be donated to benefit PCH. Last year Dairy Queen raised $55,000 dollars!!! Incredible!</span></div>
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<span style="font-size: x-small;">At 9:30am Emmett will be at Dairy Queen and will be on </span><span style="font-size: large;">Channels 3 and 10 live</span><span style="font-size: x-small;">! Come enjoy a Blizzard and help </span><span style="font-size: large;">Phoenix Children's Hospita</span><span style="font-size: x-small;">l, our home away from home!</span></div>
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</span></span>Emmett's Fighthttp://www.blogger.com/profile/08242572336190123738noreply@blogger.com0