Monday, September 30, 2013

Orange or Green for the Birthday Boy!

Emmett's 4th Birthday is tomorrow October 1st!
I was thinking it might be fun to celebrate Emmett's birthday with you all.

 Here are a few instructions on how you can help celebrate Emmett's birthday:
1. Wear Green, Orange, Grey or an Emmett's Fight T-shirt or make a Happy Birthday sign for Emmett
2. Post a picture of you wearing your Emmett's Fight colors on Emmett's Fight Facebook Page
3. I will share it with Emmett and Ethan to let them pick their favorite photo. 
4. Wednesday I will post the favorite picture on the blog!

A few example below:

I am so excited to see all of the great pictures!

Wednesday, September 25, 2013

Button Battery Ingestion Awareness in Florida!

This past weekend our family had the opportunity to venture down south to beautiful Orlando, Florida! Our family was asked to share our story about Emmett and the importance of keeping button batteries out of little one's reach for Child Safety Month.  We hope all those who view the segment will recognize the importance of safe guarding their homes.
The neatest experience, Michael was able to do an entire interview in Spanish(he speaks Spanish fluently)! We hope to reach all families around the nation and hopefully one day much farther!
The segments will air this week! I will post the air-dates as soon as I am informed, otherwise they will be posted on youtube and then re-post them later in the week.

Emmett is now a pro at this interview business, by the 3rd one he kicked off his shoes and really got comfortable.

After the interview were over, we set off to visit the Atlantic Ocean! It was so beautiful and the water was incredible warm. We are so used to California's cool Pacific water. I will take the warm water anytime, I actually got in it;)
Emmett collected sea shells while Michael and Ethan had fun riding the waves. I wish Phoenix had a beach....

On Sunday we took our boys to see the beautiful LDS Temple in Orlando. It was so gorgeous and the boys enjoyed the water fountain displays and chasing lizards

Ethan was quite the videographer. He took pictures and narrated our journey throughout the weekend. So sweet!

Our family LOVED downtown Disney! The ambiance was so magical!

First time Ethan and Emmett met Mickey! 

We took the boys to Magic Kingdom! I LOVE Disney, sigh! All of my childhood memories just rushed back into my mind. The boys soaked it all up! They both said that their favorite ride was the Magic Carpet ride.

Emmett's expression right after meeting Mickey.

Ethan picked out some new shades while at Disney World. I can't believe it is Fall already. The park was decorated in charming Fall decor.

The Lego store is the boys favorite of all.

The last day the boys wanted to try miniature golf. It was fun but the humidity Florida has, goodness! I am so used to the dry heat of Arizona. It was a wonderful and much needed vacation for our family. I am so grateful for the opportunity our family had to continue to educated those in the community about button  battery safety.

Thursday, September 12, 2013

A Rap about Emmett and Me!

Here is a tribute to all of you "Trach Moms" out there. My Dad loves to write up poetry and today he said these words kept rolling over in his mind, so he decided to write them down and put it to a rap.  So thank you to my Dad who notices the everyday craziness that happens in my home. Thank you for always being willing to help. I love you Dad! Thank you for thinking I am "awesome". 

a – a – a – Awsommme!
I know an awesome Mom!
She used to be my girl,
But now she's got two boys,
And she know how to curl. (I am a hairdresser)
She does her own blog,
And she’s on the TV,
She’s - got more hops,
Than energizer bunny.  (Battery Controlled)
bo – bo – bo – bolusssss!
She knows all the hospitals,
She knows all the rules,
The doctors better listen,
Or she’ll take them to school.
She mixes up the food,
And it looks kind of ikk,
And if you need to suction,
Put your thumb on number 6!  (The number we have to suction Emmett's trach)

s – s – s – Suctionnnnn!
She has to watch the trach,
What he eats, she has to see,
And when he cracks smile,
Emmett, where’s the H M E?
Two boys that like to wrestle,
And get carried away,
You get them off to bed,
And start again the next day!

Oh yea, she's Awesome!
a – a – a – Awsommme! Awsommme!

-By Stan Thomasson

Saturday, September 7, 2013

An apology and a blog post WAY overdue!

 Goodness! I have to apologize for the absent over the past month. What a whirlwind it has been, however a very exciting whirlwind and I am about to tell you all about it! 

Mr Ethan started Kindergarten!!! I can't believe he is old enough for this exciting adventure. I of course was more anxious than he was and could not sleep the night before. I has a little worried that he would have some anxiety after dropping him off, but he rocked it like a champ! He said to me, " I got this, mom, I got this".  He has a fabulous teacher who sends home daily emails about his homework assignments and how much she enjoys working with the kids in her class. She has been such a dream as a teacher, especially for a first time kindergarten mom;).

Ethan wears a uniform, which I am loving, and makes sure we are 15 minutes early to school each day. He watches the clock and when its time...we all better be in the car or else.... This has been a struggle for me since I am known for being "fashionably late" everywhere I go. But with Ethan's help, we have been "early" every morning since school has begun. Yahoo!

We have another school boy in our home! You guessed it, Mr Emmett! He is officially a preschooler and I am not hyperventilating. To be honest, I did sit in the first three weeks of school just in case he needed me:) I do realize that I am a helicopter mom, however I will forever justify my reasoning for it. Michael has told me I just need to work through it before he gets married, so I have about 30 years right?!?;)

He too has the most wonderful teacher! Emmett LOVES her and is so excited when it is time to go to school. Emmett also attends school with two of his best pals, Owen and Cooper. The first day of school, Cooper ran up to Emmett, grabbed his hand and said "come on Emmett, I show you around". Oh precious!!!
Emmett is also starting to wear a pasi muir valve (a one way valve) on his trach. The valve enables his voicing to be louder for others to understand him. He loves having a  "loud voice". Evidence: He started yelling all around the house, laughs and says, "my voice is loud" and then giggles some more. Seriously, the simple things in life are the ultimate best!!!

So there is one more member of our family attending school that started this month. It is me! I did it! I have talked about going back for a few years now and I have officially done it. It will be a long journey, but my friend Kathy told me, "you are going to live the next ten years anyway, might as well go to school while you live it". Well said and needless to say, that helped me take the plunge and just do it. My goal is to be a Speech Pathologist and it will probably take me the next ten years but I am so excited about it! I know it will help me to have a better understand of Emmett and his life long challenges.I  hope to be able to help families with similar situation as ours family and give back.

Last but not least for the month of August, our family said farewell to our home of eight and one half years. It has been bitter sweet. Michael and I have shared so many sweet memories of bringing our babies home and all the joys and laughter that family life brings... On the flip side there are many memories I am ready to leave behind and forget. The past three years of Emmett suffering and struggling, paramedic's filling the living room and many anxious and sleepless nights. Michael and I feel that now that Emmett is healing so beautifully that a move  was a fresh start for our little family. Our family has stayed in the same area, for we sure love the community that surrounds us. So we say farewell old home, farewell...

Emmett's Fight has some new and exciting opportunities coming up in the near future and we are excited to continue to spread the word about button battery dangers. We are so grateful Emmett is thriving and we savor every moments we have together as a family!
Go Emmett, Go!